I sat at the island in our kitchen and just watched… Our oldest daughter, filling her glass with water, our middle child Elizabeth getting ice in her glass and then, she too filled hers with water, set it down, and got busy getting her evening snack. It is at this point that Emily decides to drink Elizabeth’s water….”why?” You might ask….Why when hers is right there does Emily have to drink Elizabeth’s? According to Emily, it is because “Elizabeth always takes drinks of my water whenever I have it on the island”
I continue to watch this unfold and listen to Elizabeth’s return response. Continue reading
So many times I read about and hear about parents with a special needs child and their experiences with people looking and commenting about their child. Due to a lack of understanding and sometimes a missing compassion gene, comments get made, looks get sent and we as parents die a little bit inside.
We try to speak for our children, we try to teach others about our children, we try to be their advocate, we try to get the world to bend to their needs. Yes, each and everyday we live and work with our children.
I know from my personal experience that Elizabeth is with me ALL DAY, EVERYDAY….meaning I know I think about how she is doing, has she made any gains, has their been a problem? I would dare anyone to challenge a parent of a special needs child to deny the above….. Continue reading
I saw the weather forecast….a severe thunderstorm warning is in effect for….
As much as we had been waiting for and praying for and thinking about Spring, I had forgotten the one part of it that I so dread …the weather. To you and me it is rain, some wind and thunder…to Elizabeth and others with SPD it is a hugely nerve wracking experience. Complete with the repeatedly asked question ” the rain is done now, right mom?” To which I answer ” Almost”, “I think pretty soon it will pass us” until the I reach the point where, if physically possible, I would fly up to the sky and push the storm away. Continue reading