I was fixing Elizabeth’s hair this morning and may I add that her hair takes a village to do, as it is so curly and PUFFY! I am working on her doing her own hair well but it is a dyspraxic nightmare. I can remember trying to teach her how to put the hair gel on her hair. I told her to put some on her hand, rub her hands together and then put it ALL over her hair. She ended up with the gel on the top of her head only and in a blob as well. So suffice it to say, it is a work in progress! So anyway, I was doing her hair and then she went off to wash her face before her make up goes on. I was thinking of all the little behind the scene things I do for Elizabeth each day. Whether it making sure her clothes matched when she was younger to double checking for spots on her shirts to now encouraging her to remind me to touch up her nail polish when it chips. These are all little things but to me such important things. I have always known that Elizabeth wants to have matching clothes ( see my blog at www.talktools.com ), clean tops, fresh nails and so so many more things but simply cannot complete the tasks by herself. So we help her have what she wants. As she has grown and achieved, more detailed, skilled tasks greeted her. So we keep attempting new things and keep working. But in the meantime, it falls to us to help her with things she cannot yet do well. Continue reading
Hi to everyone reading my blog. As you know I am the mother to an wonderful, amazing daughter who has the disorders of Dyspraxia and Sensory Processing Disorder or SPD.
Elizabeth is an absolute love but those disorders simply do not quit. I share the following example of some of the dyspraxic moments we have shared recently….
If you know Elizabeth, you would know her to be fun, funny and to enjoy a good laugh and sometimes she will deadpan a response to a question and not realize she is being funny. Continue reading
Dear Santa, It is hard to believe it has been a whole year since I last wrote to you. I hope you are doing well and you are healthy. Our year has been one that has taken us to really happy places and to some very sad ones as well but you already know that, after all you are Santa.
I know you are used to reading letters asking for toys or gifts for others but the things I am asking for are so different. I believe that Christmas is a magical time, with thoughts of magic in mind, I hope the things I am asking for could be possible.
When I think about what I want for this year, I think my heart wants peace. The kind of peace that comes from within and helps with handling all the things that come my way. Parents of special needs children can never really control what we will be facing each day, so this kind of peace is priceless. We have all faced days when we feel anything but peace. Please leave that for us Santa, I know you understand.
When I think of this year, I can see the milestones that Elizabeth has achieved, the successes we have played a part in. I ask Santa, for all of us that we have a strong memory for these good things. That somehow we will all remember these good, happy moments. How quickly, we can find ourselves focusing on what went wrong or what we need to do, instead of calling up a good thought or success. I ask for all of us who have those special children, the memory of the good to shine just a bit brighter and stronger than the negatives.
At the beginning of this year, I had a very sick Dad, at the end of the year, I do not have a Dad on this earth anymore. I am sad for sure, Santa. I miss the man who always watched out “just a bit more” for his little girl, I miss that man who would smile at me with those blue eyes that transmitted more love than a 1,000 words could ever say. Will I see those eyes again? I hold the belief in my heart that one day I will. But I ask Santa, for all of us parents of special children to have the clarity of thought to “live in the moment” to hug, love, cherish and be thankful for those we love so much, while they are hear with us to love, to hug or to look into their faces. So much of life is busy and sometimes that busyness obscures our view of just what is important right now. I am so in need of this clarity, Santa, as this year has been quite difficult.
I hope you like the cookies we left for you, Elizabeth helped to make them, She is continually learning and growing. We have all grown with her on this journey. I ask Santa, that those working with our children in the schools be given the gift of empathy, and belief in our children. We know they can learn and succeed and we know how they learn. I ask that those working with our children have this presents…each and everyday…our children need them to!
Thank you Santa, for reading my letter, I know you will do your best.
Merry Christmas to you Santa, with God’s will, we will be here next year to write to you, share our wishes and ask for some Christmas magic once again.
Blessing to everyone at this special time of year.