So many times I read about and hear about parents with a special needs child and their experiences with people looking and commenting about their child. Due to a lack of understanding and sometimes a missing compassion gene, comments get made, looks get sent and we as parents die a little bit inside.
We try to speak for our children, we try to teach others about our children, we try to be their advocate, we try to get the world to bend to their needs. Yes, each and everyday we live and work with our children.
I know from my personal experience that Elizabeth is with me ALL DAY, EVERYDAY….meaning I know I think about how she is doing, has she made any gains, has their been a problem? I would dare anyone to challenge a parent of a special needs child to deny the above….. Continue reading
I saw the weather forecast….a severe thunderstorm warning is in effect for….
As much as we had been waiting for and praying for and thinking about Spring, I had forgotten the one part of it that I so dread …the weather. To you and me it is rain, some wind and thunder…to Elizabeth and others with SPD it is a hugely nerve wracking experience. Complete with the repeatedly asked question ” the rain is done now, right mom?” To which I answer ” Almost”, “I think pretty soon it will pass us” until the I reach the point where, if physically possible, I would fly up to the sky and push the storm away. Continue reading
This particular topic is the hardest for me to write about as I am still dealing with the community or as I say to Elizabeth “public”. I think once you exit your door you enter “public” and with it you enter a place where your child may act differently than other children and where they may garner more attention than others andwhere you may be more on edge. I talk about not being too hard on yourself the last time I talked about being in a public place but we all know that is a much easier said than done statement. I find myself having mini-pep talks with myself often. Telling myself that the salelady, who just treated Elizabeth like she a little child, just did it to be nice. Or that next time it happens I will tell the saleslady to talk to her as you do anyone else. I have these mini-pep talks with myself because “public” is always going to be there and it is someplace you NEED to be in. ( unless you order all your groceries on line…just a joke here) but seriously, find some kind words to say to yourself when you are nervous, find some kind words you feel comfortable saying to people who may look or treat your child differently than you would like and tuck them away to dip into if you need them. It helps you be prepared for “public” and allows you to enjoy the successes of even being there in the first place. Continue reading