Tag Archives: family issues

It Is Okay To Pass The Baton

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“Michele, I was waiting for you to call and tell me what time you needed me to come watch the girls.”  This was the voice on the other end of the phone, and it belonged to a dear friend.

” Oh, Chris. John and I decided we would just stay home, you know, it was easier.”  My reply lacked strength.

“Michele you know Elizabeth would have been fine with me, we would have had a lot of fun,  I even had some fun toys to bring over for us.  You really need to let this happen next time!”

” I know…you’re right, but…….. Continue reading →

When They DON”T Ask

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So many times I read about and hear about parents with a special needs child and their experiences with people looking and commenting about their child.  Due to a lack of understanding and sometimes a missing compassion gene, comments get made, looks get sent and we as parents die a little bit inside.

We try to speak for our children, we try to teach others about our children, we try to be their advocate, we try to get the world to bend to their needs.  Yes, each and everyday we live and work with our children.

I know from my personal experience that Elizabeth is with me ALL DAY, EVERYDAY….meaning I know I think about how she is doing, has she made any gains, has their been a problem?  I would dare anyone to challenge a parent of a special needs child to deny the above….. Continue reading →

Pre- Christmas and Post Thanksgiving

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Wow, I am amazed as I am every year at this time that Christmas is here. I know that sounds weird but it seems to me it arrives sooner and sooner each year. due to the stores putting out decorations around the Fourth of July these days. But I think that because so much of the feelings and hopes for a “Happy Holiday” and a “Merry Christmas” are centered around a rush of lights, colors, sounds, smells and required activities that I think I see, to a lesser degree than before, but still see Christmas as as “Oh my God, how will we get Elizabeth to do this activity?” or “How will she do in the big crowd?” “what social story can I use to help guide her behavior?” We have had many a Christmas decorating where Emily was happily hanging ornaments and Elizabeth could not be coaxed from behind a chair in the den. We have had a number of Christmas days that saw Elizabeth asking not once but what felt like 753 times “Time to go home now, right Mom?” Continue reading →