When someone tells you your child has dyspraxia and sensory processing disorder, you really do not know what it means. You might have the actual definition, might have the facts, or the list of symptoms. And trust me, those things are immensely helpful. But once you close the book, or “X” out of the website, you are left to turn around an look at your child and wonder what does it all really mean to your child’s life? How does knowing that scratchy tags and too tight clothes really translate into a Monday morning routine? How does knowing they will struggle with balance, throwing, or writing help your child blend into a regular days activities?
Some of the hardest times for parents of a child with these disorders is to learn how to take the information you read about, hear about or learn about on website, facebook pages or support groups and somehow translate all those words, terms and advice into something that can help YOUR child in their day-to-day life, into those moments when they are screaming because they cannot stand having you touch them to help brush their teeth or those moments when they are writing their name and you are sure that the letters you see on their paper in no way look like the letters you know comprise the alphabet. Those are the times when you simply wonder how do you make it all mesh? Continue reading
I sat at the island in our kitchen and just watched… Our oldest daughter, filling her glass with water, our middle child Elizabeth getting ice in her glass and then, she too filled hers with water, set it down, and got busy getting her evening snack. It is at this point that Emily decides to drink Elizabeth’s water….”why?” You might ask….Why when hers is right there does Emily have to drink Elizabeth’s? According to Emily, it is because “Elizabeth always takes drinks of my water whenever I have it on the island”
I continue to watch this unfold and listen to Elizabeth’s return response. Continue reading
“Elizabeth, click here, now hit images..now hit print…send it to the printer marked Brother” ” Okay, get it out of the printer” “Let’s cut them out and glue them on the sheet” and out comes a picture. One of four that we are required to look up, print and label. They must all be from a certain time in history. Yeppers…it is class project time.
I, like so many of you, have to LOVE the days when our children be them our special needs ones or our typically developing ones, have NO homework. They come home with the happy news but it is me who does the happy dance right along with them. And on the flip side, when I hear about a project, I think ” Ugh, what is do when?” “How should we plan the time to do this?” ” How do I break this up for Elizabeth so she can do it and learn?” Continue reading