Tag Archives: sensory processing disorder ( SPD )

SPD And Dyspraxia- A Marathon Not A Sprint

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As we are in the middle of the month of October or Sensory Processing Awareness month, I wanted to post a bit about something everyone on this journey needs to know.

I can remember the day when I learned it…..I can remember that it was NOT an easy thing to accept….and I can remember the feeling of understanding once I did.  and it is that this path we are on….this journey…our road…is a marathon, not a sprint.  That SPD and its dyspraxic component are part of your child forever.   That there will not be a day that it is simply gone.  We need to know this to realize all we do for our children will make a huge wonderful difference in their lives, but that through their lives SPD and dypsraxia  will play a role. Continue reading →

A Fall and A Nosebleed

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When someone tells you your child has dyspraxia and sensory processing disorder, you really do not know what it means.  You might have the actual definition, might have the facts, or the list of symptoms. And trust me, those things are immensely helpful. But once you close the book, or “X” out of the website, you are left to turn around an look at your child and wonder what does it all really mean to your child’s life?  How does knowing that scratchy tags and too tight clothes really translate into a Monday morning routine? How does knowing they will struggle with balance, throwing, or writing help your child blend into a regular days activities?

Some of the hardest times for parents of a child with these disorders is to learn how to take the information you read about, hear about or learn about on website, facebook pages or support groups and somehow translate all those words, terms and advice into something that can help YOUR child in their day-to-day life, into those moments when they are screaming because they cannot stand having you touch them to help brush their teeth or those moments when they are writing their name and you are sure that the letters you see on their paper in no way look like the letters you know comprise the alphabet.  Those are the times when you simply wonder how do you make it all mesh? Continue reading →

When They DON”T Ask

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So many times I read about and hear about parents with a special needs child and their experiences with people looking and commenting about their child.  Due to a lack of understanding and sometimes a missing compassion gene, comments get made, looks get sent and we as parents die a little bit inside.

We try to speak for our children, we try to teach others about our children, we try to be their advocate, we try to get the world to bend to their needs.  Yes, each and everyday we live and work with our children.

I know from my personal experience that Elizabeth is with me ALL DAY, EVERYDAY….meaning I know I think about how she is doing, has she made any gains, has their been a problem?  I would dare anyone to challenge a parent of a special needs child to deny the above….. Continue reading →